Learning My Body Again
- Rebuilding
- Written by Bernard N. · 2024
"The physiotherapist told me we would celebrate the small wins. I thought she was being condescending. Then I took three steps without holding anything and I cried in the middle of a hospital corridor."
- RECOVERY JOURNEY · LEARNING TO WALK AGAIN · REBUILDING AFTER STROKE · HEALING AFTER STROKE
I had the stroke at forty-one. I was in a meeting. That detail has always felt absurd to me, that something so significant happened in such an ordinary context. One moment I was in a meeting. The next I was not.
The weeks immediately after are fragmented in my memory. Impressions rather than a linear narrative.
The particular quality of light in the hospital. The sound of equipment. The faces of my wife and my brother alternating in the chair beside the bed. The strange work of trying to understand what had happened to me while also being inside it.
What I remember most clearly from that period is a conversation with the consultant about what rehabilitation might look like. She was careful and honest in the way that good doctors are, which means she did not make me promises. She told me what was possible and what would depend on factors we would only understand over time. I appreciated the honesty. It was also very hard to sit with.
The rehabilitation process was the most sustained effort I have ever put into anything in my life. And I am someone who has always worked hard. I had run marathons. I had built a business from nothing. I thought I understood physical and mental effort.
I did not understand it the way rehabilitation taught me to understand it.
The small wins the physiotherapist talked about were real. Regaining the ability to hold a cup without shaking was a win. Speaking at a pace that felt close to normal was a win. The first time I walked from one end of the rehabilitation ward to the other without stopping was significant in a way I cannot fully communicate.
“I had to rebuild a relationship with a body that had frightened me. That takes longer than the physical recovery.”
The thing nobody talks about enough, in my experience, is the psychological dimension of physical recovery. My body had done something terrifying. Without warning and without my consent, it had stopped working in ways I had taken entirely for granted for four decades. Even as it began to recover, even as things slowly returned, there was a complicated relationship to rebuild with it.
I found myself distrusting it in ways that were not always rational but were completely understandable.
Every unusual sensation, every moment of fatigue, carried a weight it had not carried before. I was aware of my body in a way I had never been, and that awareness was not comfortable.
What helped was time, which is unsatisfying to say. And it was the people around me, particularly my wife, who held steady when I was not able to. And it was the rehabilitation team, who treated the psychological dimension of recovery as seriously as the physical one.
It was also a conversation I had with another patient in the rehabilitation unit, a man in his sixties who had been through something similar two years earlier. He did not say anything profound. He told me what his first year back at home had actually been like, practically, honestly, without making it prettier than it was. That conversation did more for me than several of the more official kinds of support I received, because it was real and specific and from someone who had actually been where I was standing.
That is why I am writing this.
I am three years out from the stroke. I walk without assistance. I returned to work part-time and then, eventually, full time. There are things that are permanently different, some physical, some in how I relate to time and to what I choose to spend it on. I would not say I am grateful for what happened. But
I am here, and the life I have now is a full one.
If you are somewhere in the middle of something like this, the thing I most want to say is that the middle is its own thing. It does not need to be performing recovery. It does not need to be optimistic on a schedule. It just needs to keep being the middle, until it is not anymore.
That is enough.